Sorry, no door buster deals, just a long overdue post. (I just wanted it to sound exciting)
I had such big plans of keeping up on this blog with more regularity. "I'll have all this time on my hands and this will be a good way to fill it," I thought. But it is surprising how quickly my time here in Rochester can slip away; and I guess that is a good thing. I'm down to five more "zaps"; only two more days after today. Yeah!
Yesterday I had the chance to go down to school for our Thanksgiving meal with the students. God, it felt so good to be back! I was overwhelmed by the reception and by the students who were so concerned with how I am doing and when I am coming back. I have never taken a leave like this, and I suppose that somewhere, deep down, I was a little afraid that they would forget me. Any fears I may have had were certainly put to rest. The smiles, hugs, and well wishes were some seriously good medicine.
One of the things that kind of hit me yesterday was a realization about what I am thankful for. The students and staff did a video about what they are thankful for, and then went around and asked if anyone had anything to add. I had forgotten to get my video clip to the school to add to the main video, but I had been thinking about what I would say. Of course I am thankful for my family, my home, my incredible care team at Mayo, and so many other tangible things. However, what came out was that I am thankful for this experience, this "Cancer Journey." I hate that term, "journey". It sounds like something you would sign up for at a travel agent. "Join us on our journey to the Swiss Alps, or the South Pacific, etc. I like to think of it more as an "adventure", or and "odyssey", but whatever.
At quartet practice the other night, my friend, Bob, was talking about his coy fish, and how they will only grow as big as the tank they are in. and I feel like the same principle applies to us. I believe that as we go through our lives, our view of the world tends to become focused, or narrowed, by the things we regularly do, the people we regularly interact with, and the places we regularly go. That's why vacations are so memorable. They take us out of our "bowl" and we have to look at things as a tourist, or an outsider. We let our guard down and try new things. We may interact differently because we are freed of the expectations that have been placed upon us in our small circle at home. In this environment we are open to so much more, and we allow ourselves to truly experience life. We relax, recharge, and, I believe, we really grow.
Keep in mind, all of that growth is done with the expectation that, at the end of the vacation, we can go back to the safety of our "bowl". While cancer is no vacation, it is certainly a huge step outside of my bowl. It also comes with the realization that my bowl may never be the same again, that I cannot leave this stuff outside. From a physical standpoint, that sucks. But from an emotional and growth perspective, it is priceless. To say that I am thankful for cancer sounds ludicrous, but when I consider the perspective it has afforded me on life, I cannot argue with it. . It has made me do and say things that I would have put off for later days, that mat have never come. It has brought me into contact with some incredible people whose insights and strength have made me grow as a person. And it has helped me to see new sides of my family, friends, coworkers, students, and community members that I would never have seen, if not for cancer.
I know that I can never go back into my old bowl, This experience has changed me too much, and I have grown far too big for that now. (no fat jokes needed) So, for that, I am truly thankful this Thanksgiving.
D
Life, Cancer, and Stuff
Wednesday, November 25, 2015
Friday, November 13, 2015
Week 1
It's been an interesting week. I started my two a day radiation sessions, and was supposed to do chemo from Tuesday through Thursday, but my white cell counts were too low; by a lot. So they pushed that back to next Monday through Wednesday. Luckily my big sister, Jodi, was able to switch her days off from this week to next, and she will be coming to my chemo sessions with me; I'm really looking forward to that,
The days here get a little long, especially if I only have the two radiation sessions, which only take about 15 minutes each. So I have been doing some school planning, exploring Rochester a little more, and doing this. It is only two more weeks of this schedule and then it will just be coming over for chemo.
I know it probably sounds a little weird, but I sort of look forward to the time spent in the radiation department. The treatments are quick and relatively painless, and I am surrounded by people who know what I am going through and are some of the most upbeat people I have ever met, considering our shared condition. Maybe it is the shared sense of how lucky we are to have access to this world class facility. Maybe it is just a greater appreciation for life, and how being negative all the time won't change your situation for the better. Whatever it is, I rarely leave feeling worse than when I come in.
I have no doubt that there will be some darker days ahead. Side effects of both the radiation and the chemo will increase with time. At times I worry about how I will feel for Christmas, and how I don't want my health to be a damper on the excitement of the season for my family. But, I guess that is something I can't control, and I will just have to roll with it, just as my wonderful family has done for me throughout this process. It will get better, I just need to let go and trust that the universe has bigger things in store for me.
The days here get a little long, especially if I only have the two radiation sessions, which only take about 15 minutes each. So I have been doing some school planning, exploring Rochester a little more, and doing this. It is only two more weeks of this schedule and then it will just be coming over for chemo.
I know it probably sounds a little weird, but I sort of look forward to the time spent in the radiation department. The treatments are quick and relatively painless, and I am surrounded by people who know what I am going through and are some of the most upbeat people I have ever met, considering our shared condition. Maybe it is the shared sense of how lucky we are to have access to this world class facility. Maybe it is just a greater appreciation for life, and how being negative all the time won't change your situation for the better. Whatever it is, I rarely leave feeling worse than when I come in.
I have no doubt that there will be some darker days ahead. Side effects of both the radiation and the chemo will increase with time. At times I worry about how I will feel for Christmas, and how I don't want my health to be a damper on the excitement of the season for my family. But, I guess that is something I can't control, and I will just have to roll with it, just as my wonderful family has done for me throughout this process. It will get better, I just need to let go and trust that the universe has bigger things in store for me.
Thursday, November 12, 2015
So How Does this Stuff Work?
I get a lot of people asking me how I'm doing, or what is up with my cancer, and I struggle to not get too technical. I realize that a lot of the folks I talk to don't really understand what cancer is, or how it works. I don't blame them. I didn't really know much about it myself until I was forced to learn. So I put together a few things to help folks get a little more insight into what exactly cancer is, and how I am being treated for it.
Forgive the title of this first video; I don't intend to let cancer beat me. This was just the most straight-forward video I could find about how cancer impacts the body. I am living proof that many types of cancer can be beaten, and there are ground breaking discoveries being made every day about how to treat different other types.
Radiation Therapy
Since Monday 11/9/2015 I have been receiving radiation twice a day. Radiation sounds pretty ominous. I was telling Chris the other day that when I really stop and think about it, I get this image in my head of a hot dog that has been left in the microwave too long. Gross, I know, but its just my take on the process. This video helps explain the process a little more clearly for folks who've never had the pleasure of experiencing it; and I hope that you never do.Chemotherapy
Every 3 or 4 weeks I receive chemo; it depends on how my body is recovering from the last one. This video gives a "quick" overview of what chemo is and how they use it to attack the cancer cells.And Away We Go
Lately it feels like the last 4 years has been all about chapters. We all go through different chapters in our lives; childhood, adolescence, independence, marriage, etc. But of late, the chapters seem to be shorter, with an incredible amount of action packed into each one. Who can forget such thrillers as, lymphoma, melanoma, and now, moat recently, small cell lung cancer.Each one of these chapters has its own twists and turns, and each one provides new insights into the main characters, while introducing new and important characters who help to thicken the plot.
It often seems to me that this should be someone else's story. This is the stuff I see on some news magazine special, or read about in Reader's Digest. This isn't the stuff that happens to ME, or to MY family. And yet here I sit at the Mayo Clinic, waiting for another appointment, surrounded by others who have probably thought the same thing at some point.
I'm starting this blog to share with just a few people who I love. I want you to know about this process, and give some perspectives that I don't always share on Facebook, or Caring Bridge; sometimes there is just too much stuff to put out there.
I cannot promise that this won't get heavy at times, but I will do my best to keep this upbeat, or at least put a positive spin on things.
Don
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